Demi's Afterglow · Where love continues to shine.

Demi's Bright Light

Demi's life was filled with light, love and meaning. Demi's Afterglow was created to carry that light forward – so families never feel alone.

Supporting families, raising rare disease awareness, and honoring lives that leave an everlasting glow.

Raising visibility for rare diseases, so more families get answers sooner.

Helping families through hospital stays and the hardest moments.

Investing in research and building a community of hope.

Practical help for families living with a rare disease, from the first hospital stay onward.

Family Care Packages
Comfort kits for parents in need.
Hospital Stay Support
Help with the costs and the details during critical times.
Research Funding
Advancing treatments for rare diseases.
Community & Connection
Bringing families together so no one walks this alone.

“Even after the sun sets, the afterglow remains.”

Your gift supports a family facing a rare disease: a care package, a night near the hospital, a step toward better treatments.

Help pack care packages, staff an event, or lend a skill.

Businesses and groups can sponsor care packages or host a fundraiser in Demi's name.

Tell Demi's story and help another family find us.

If your child has a rare disease and you need a hand, tell us what would help.